Cheryl Lecroy
Fear of Recurrence - by Cheryl Lecroy
In this article, wellness coach Cheryl Lecroy talks about Fear of Recurrence: what it is, why it happens, and how to manage it.
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What is the Fear of Cancer Recurrence?
Experiencing cancer brings a wide range of emotions. Initially, your primary focus may have been on undergoing treatment and eliminating the cancer. However, as the treatment concludes, new uncertainties often arise. While you might feel relieved that the treatment is over, questions about what the future holds may begin to surface.
One significant uncertainty is that doctors rarely declare a cancer as "cured," even when patients appear to be cancer-free. This caution stems from the possibility that microscopic cancer cells could still remain. Even though for many individuals the cancer does not return, the fear of its recurrence still is a common concern. This is a normal reaction, with various studies indicating that two-thirds of cancer survivors experience anxiety about their cancer coming back.
Typically, the first year after cancer is when these feelings are most intense, gradually diminishing over time. However, some people find that the fear of recurrence persists for longer periods and never completely disappears. Managing this uncertainty becomes an integral part of living beyond cancer.
I always carry some fear of recurrence, especially because I had metastases and had to remove several ganglia. I always carry that fear that something might have escaped from the Doctors and is growing in some hidden corner of my organism. I was very afraid of dying but I overcame it by drawing on my willingness to live and believing that I was going to be fine. I tapped into joy, faith, and lots of support from loved ones. I always found the strength to fight, laugh, and talk.
*Ani Velasco, a breast cancer survivor*
Assessing the Fear of Cancer Recurrence
Acknowledge your emotions, and most importantly, treat yourself with kindness.
Consider joining a positive support group, being surrounded by fellow survivors who truly understand your experience can be incredibly empowering.
Incorporate positive self-affirmations and use kind, loving language when thinking or speaking about yourself.
Spend more time engaging in activities you love. A positive distraction through at least one enjoyable activity each day can significantly improve your mindset and mood.
Remind yourself daily that moving forward is the only option. Rather than aiming to return to the old "normal," focus on embracing the present moment by asking yourself, "What can I be now?"
Establish a self-care routine that encourages positive lifestyle choices, which can help reduce the risk of recurrence. Incorporating proper nutrition, exercise, and stress-reduction techniques are just a few ways to regain some control over your situation.
Remember, you are not just a statistic. Recurrence rates do not account for the positive changes and reinforcements you are making in your life. You are a wonderful, unique individual!
“I live with the threatening and unwanted thoughts that it can and most likely will return. My prognosis is good, and at the same time it is important to acknowledge the lifelong journey of being a cancer survivor. Even after the good news, even after health comes back and life resumes some normalcy, a cloud still remains - questions still arise, worried thoughts continue, and feelings of all kinds surrounding cancer life still present themselves. If you are like me, perhaps you have had similar thoughts and feelings. But that is okay. You are normal. You are okay, and this is all part of the journey. “
Dr. Tommy Bischoff, Cancer survivor and therapist for the after cancer
Common Symptoms and Experiences
Heightened anxiety over minor physical symptoms: Even small aches, coughs, or headaches can trigger intense worry that cancer has returned.
Constant worry: Thoughts about cancer recurring often dominate, especially at night before bed and first thing in the morning.
Sleep disturbances: Anxiety may lead to long-term sleep problems lasting more than a few weeks.
Loss of appetite: A persistent lack of appetite can be another symptom.
Social withdrawal: Individuals might avoid spending time with friends or lose interest in their usual activities.
Difficulty concentrating: There may be struggles with concentration at work or school.
Coping with Fear of Cancer Recurrence
Strategies and Techniques
Acknowledge your emotions, and most importantly, treat yourself with kindness.
Consider joining a positive support group, being surrounded by fellow survivors who truly understand your experience can be incredibly empowering.
Incorporate positive self-affirmations and use kind, loving language when thinking or speaking about yourself.
Spend more time engaging in activities you love. A positive distraction through at least one enjoyable activity each day can significantly improve your mindset and mood.
Remind yourself daily that moving forward is the only option. Rather than aiming to return to the old "normal," focus on embracing the present moment by asking yourself, "What can I be now?"
Establish a self-care routine that encourages positive lifestyle choices, which can help reduce the risk of recurrence. Incorporating proper nutrition, exercise, and stress-reduction techniques are just a few ways to regain some control over your situation.
Remember, you are not just a statistic. Recurrence rates do not account for the positive changes and reinforcements you are making in your life. You are a wonderful, unique individual!
“I live with the threatening and unwanted thoughts that it can and most likely will return. My prognosis is good, and at the same time it is important to acknowledge the lifelong journey of being a cancer survivor. Even after the good news, even after health comes back and life resumes some normalcy, a cloud still remains - questions still arise, worried thoughts continue, and feelings of all kinds surrounding cancer life still present themselves. If you are like me, perhaps you have had similar thoughts and feelings. But that is okay. You are normal. You are okay, and this is all part of the journey. “
Dr. Tommy Bischoff, Cancer survivor and therapist for the after cancer
Addressing Fear Cancer Through Therapy
Therapy is essential for helping cancer survivors manage the common and overwhelming fear of recurrence. Various therapeutic approaches, such as Cognitive Behavioral Therapy (CBT) and Mindfulness-Based Stress Reduction (MBSR) help survivors challenge negative thoughts, focus on the present, and express their emotions in a safe environment.
Book an appointment with one of our care team professionals at The After Cancer. We are here for you with evidence-based practices to support you to a healthier and more resilient survivorship.
Reducing Anxiety Through Regular Check-Up
Regular follow-up care and screenings play a vital role in detecting any potential recurrence or new cancers early. Communicating openly with your healthcare providers about concerns and staying informed about your personal risk factors can provide reassurance and support in managing the fear.
Conclusion
Living with the fear of cancer recurrence is a challenge that many survivors face, but it is essential to remember that this fear does not have to dictate your life. Moving forward with confidence involves recognizing that these feelings are a natural part of the cancer journey and that they can be managed with the right tools and support. By engaging in regular check-ups, adopting positive coping strategies, and seeking therapy when needed, you can take control of your fear and gradually reduce its impact.
Embracing life after cancer means not only acknowledging the fear but also celebrating the strength and resilience that has brought you this far. Life after cancer offers a new perspective—a chance to live with greater purpose, joy, and appreciation for the present moment. As you move forward, remember that each step you take is a testament to your courage and a reminder that life after cancer is not just about surviving but truly thriving.
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