The After Cancer Blog

October is Breast Cancer Awareness Month, a time for communities across Georgia to come together to support breast cancer research, patients, and survivors. Georgia offers many events that allow you to walk, run, or simply show support for this important cause. Here are four of the top breast cancer awareness events happening in Georgia this October 2024, complete with links to event information. 1. Paint the Town Pink 5K - Columbus Date:  October 18, 2024 Location:  Woodruff Park, Columbus Info:   https://runsignup.com/Race/GA/Columbus/PaintTheTownPink Join the West Central Georgia Cancer Coalition for the 15th Annual Paint the Town Pink 5K Fun Walk/Run . This annual fundraiser benefits the Neighbors Helping Neighbors Cancer Assistance Fund, which provides financial assistance to local individuals undergoing cancer treatment. 100% of the proceeds stay in the community, directly benefiting patients in need. This fun walk/run invites teams, families, and individuals to participate, and runners will be officially timed. Whether you're a runner or walking for a cause, this event is an opportunity to make a real difference in the lives of cancer patients. 2. Komen Georgia More Than Pink Walk Date:  October 26, 2024 Location:  Lenox Square, Atlanta Info:   https://www.komen.org/how-to-help/attend-events/race-for-the-cure/ The Komen Greater Atlanta More Than Pink  is one of the most well-known breast cancer events in Georgia. Held at Lenox Square in Atlanta, this event invites runners and walkers alike to raise funds for breast cancer research and patient services. Whether you're looking to run competitively or enjoy a leisurely walk with friends and family, this event is open to participants of all levels. Funds raised directly support Susan G. Komen’s mission to end breast cancer through research, community outreach, and advocacy. 3. Soul to Sole Breast Cancer Awareness Walk & 5k Date:  October 12, 2024 Location:   C.D. Dean, Jr., Public Safety Complex, Guyton Info: https://runsignup.com/Race/GA/Guyton/EHSBreastCancer5k oin the Effingham Health System Foundation for the 2nd Annual Soul to Sole Breast Cancer Awareness Walk & 5K  in the scenic town of Guyton, Georgia! Put on your pink and come out for a day of fun, fellowship, and remembrance as we honor those affected by breast cancer. Participants will receive a race t-shirt, professional race timing, and a finisher’s medal. After the race, visit our "Cancer Self Care" Why Attend These Events? Breast cancer events throughout Georgia in October offer more than just an opportunity to raise funds—they provide a chance to connect with survivors, show support for those fighting breast cancer, and help fund critical research. Whether you're walking in support of a loved one or participating to make a broader impact, each event offers a meaningful way to contribute to the fight against breast cancer. Mark your calendar and get involved to help make a difference this October! About Mariana Arnaut Mariana Arnaut  is the CEO and Co-Founder  of The After Cancer. She has a family history of different cancers (lung, melanoma, esophageal) and a background in digital & innovation. You can reach out to her at mariana@theaftercancer.com .

October is Breast Cancer Awareness Month, and Florida hosts a variety of events across the state to raise awareness, fund research, and support those affected by breast cancer. From walks to races and educational gatherings, there are plenty of ways to get involved. Here are some of the top breast cancer events happening in Florida this October 2024. 1. Making Strides Against Breast Cancer - Orlando Date:  October 26, 2024 Location:  Lake Eola Park, Orlando Info:   https://secure.acsevents.org/site/STR?pg=entry&fr_id=108769 Join the Making Strides Against Breast Cancer  walk in the heart of downtown Orlando at Lake Eola Park. This inspiring event gathers survivors, supporters, and families for a day of hope, unity, and action against breast cancer. Participants can expect a fun, family-friendly environment with live entertainment, survivor stories, and educational booths. Funds raised go toward breast cancer research and patient services through the American Cancer Society. Whether you’re walking in honor of a loved one or to support the cause, this event brings the Orlando community together for an important purpose. 2. Susan G. Komen More Than Pink - Miami/Fort Lauderdale Date:  October 19, 2024 Location:  Amelia Earheart Park, Hialeah Info:   https://secure.info-komen.org/site/TR?fr_id=10532&pg=entry The Susan G. Komen Race for the Cure  in Miami/Fort Lauderdale is one of Florida’s most popular breast cancer events. Set against the stunning backdrop of Amelia Earheart Park, this race invites participants to run or walk to raise funds for breast cancer research, patient support, and advocacy programs. With options for a 5K or a more leisurely walk, this event offers something for everyone, whether you’re looking to race or simply enjoy a day of support with family and friends. Survivors will be honored throughout the event, making it a powerful day of celebration and remembrance. 4. Pink on Parade 5K - Tampa Date:  October 6, 2024 Location:  400 Celebration Place, Celebration Info:   https://www.adventhealth.com/pink-on-parade The Pink on Parade 5K  in Florida brings together runners, walkers, and supporters to raise awareness for breast cancer while taking in the beautiful surroundings. This event supports the breast cancer programs of AdventHealth, helping provide resources, education, and treatment options to those affected by breast cancer in the area. Participants will receive a race t-shirt and finisher’s medal, and survivors will be honored in a special ceremony after the race. Pink on Parade is a wonderful way to spend a morning giving back to the community while supporting a cause that impacts so many. Why Attend These Events? Breast cancer events across Florida during October provide an excellent opportunity to get involved in the fight against breast cancer. Whether you’re running a race, walking with a team, or attending a community gathering, each event helps raise awareness and funds for breast cancer research and support services. These events also serve as a time to honor survivors, remember those we’ve lost, and inspire hope for the future. Mark your calendars, lace up your shoes, and join the movement to support breast cancer patients and survivors in Florida this October! About Mariana Arnaut Mariana Arnaut  is the CEO and Co-Founder  of The After Cancer. She has a family history of different cancers (lung, melanoma, esophageal) and a background in digital & innovation. You can reach out to her at mariana@theaftercancer.com .

Discovering my family's BRCA 2 mutation In April 2023, I clutched my father’s hand in a sterile surgical waiting room, as a doctor informed us that they found a tumor in my mother’s fallopian tube. It had tested positive for ovarian cancer. During her diagnostic process, we discovered that my mother carries the BRCA 2 mutation and, thus, it was recommended that all blood relatives undergo testing as well. Six weeks later, on my 39th birthday (and two days before my mom was scheduled to begin chemo), my results arrived. I, too, carried the same mutation. At the time, I was nine months postpartum with my son and my two daughters were 7 and 5. I worked full time, my family was spread out all over the country, and my world was crumbling around me. Life as I knew it, would never be the same And it wasn’t.  Given my age and that I had no plans to have additional children, every doctor I met with recommended a prophylactic double mastectomy and a hysterectomy/bilateral salpingo-oophorectomy (BSO). The reality that the same reproductive organs that had nurtured and brought my perfect baby boy into the world could now pose a potentially life threatening  risk was difficult to comprehend. The removal of my ovaries also meant facing certain and immediate menopause ; a phase of life I had yet to even consider. After a few agonizing weeks of feeling afraid and sorry for myself, I decided to turn the negative energy into something productive.  I started by gathering information. I met with every doctor possible: gynecologists, primary care physicians, breast oncologists, gynecologic oncologists, general oncologists, and all kinds of surgeons. I did every exam recommended: mammograms, MRIs, bone density scans, skin checks, vision checks, blood work after blood work after blood work. I connected with genetic specialists in North Carolina, hormone experts in Israel, menopause care providers in New York, and fem health leaders in Amsterdam. I admit that this sounds overboard but I took comfort in my proactiveness. I needed to feel armed with information before making any decisions about my body.  Talking with others In time, I told my inner circle what I was up against and started accepting offers to chat with other women who had been in my position. I found that the women, often complete strangers, speaking from their own experience was more impactful than meeting with the doctors. They were able to acknowledge the pain that comes with the uncertainty of this diagnosis and laid out how they were able to make their own decisions with regard to surgery selection, timeline, and recovery management. They shared examples of how their bodies reacted to the surgeries, how they got through the emotional rollercoaster, and what their life was like now having been through it.  Nothing Pink Somewhere along the way, I discovered NothingPink . This local organization offers support to people at high risk of hereditary breast and ovarian cancers. Among their many programs, NothingPink hosted monthly zoom support groups where we could come together to share experience and advice with women at various stages of their preventative journeys. There were many sessions where I cried the whole time or had to log out early because it all felt so overwhelming.   Eventually, the anxiety of it all was too much to bear. Every pain, bubble, or tinge that was somewhat near my abdomen had me convinced that the “silent killer” was coming for me next, so I accelerated my timeline. Six months after my mother’s diagnosis and the week of her last chemo treatment, I had my hysterectomy/BSO. Three months later, in January 2024, I had my double mastectomy, an unplanned procedure from a minor complication in February 2024, and my final exchange surgery in April 2024. Throughout each surgery, the NothingPink army was along for the ride. They provided detailed advice on what to expect before, during, and after surgery while serving as a constant reminder that I had a team of women cheering me on.  Taking control of your health I was able to get through the surgeries knowing that I had a privilege that many others did not. I was able to choose. I could take control of my health and mitigate risks on my terms. While I knew the surgeries would be hard on me and my family, I saw firsthand how much harder it is to recover from surgery  and  undergo cancer treatment. I knew I had so much to live for and, when I needed a reminder, I would hug my kids, snuggle my dogs, and admire my doting husband. They needed me and they needed me healthy. Equally important, I saw it as a profound opportunity to model courage and strength for my children who might one day have to face a version of this journey as well. I wanted them to see their mommy as a fighter.  And they did.  Going back to "normal" Today, I’m back to my “new” old self, but with a sharper focus on what truly matters and the people who are most important. I’m exercising daily, traveling the world, lifting my children high in the air, and paying it forward whenever the opportunity arises.  When I stumbled upon posts like this one - often in the middle of the night, wide awake with worry and fear - I craved advice, hope, and a dose of positivity. With that in mind, here are a few things that worked for me:  I allowed myself to be vulnerable and connect with anyone willing to share their experience and advice. I spoke with friends of friends of friends, neighbors, coworkers, grandmothers — literally ANYONE. If they were willing to make the time for me, I made the time to listen to and learn from them. I took something away from every single conversation. I researched, studied, examined, and ADVOCATED . I realized that the surgeons do this day in and day out but the area specialists have unique insight and detail - be it genetics, hormones, menopause care, or risk management. I figured out what the important questions were for me to ask and made sure I always had clear answers. When they weren’t clear, I sought out other ways to get the information I needed.  Community.  The NothingPink organization and the FORCE message board offered firsthand experience and support in a way that only women who have been through it can. They were open, honest, and offered unique insight into this all-consuming shared experience. Empowered women empower women.  Asked for help.  When I was ready, I allowed myself to accept outside support. People from all walks of my life showed up in ways I never could have imagined. My neighbors organized a meal train, my friends took my kids on playdate adventures, our children’s school delivered groceries to our front porch - I was in awe. Our extended family took turns rearranging their lives to be there for us in our darkest hours, sometimes with 24 hours notice. The pain and loneliness slipped away with each and every act of kindness. Gratitude.  Despite everything, I had so much for which to be grateful. Unlike my mother, I was in the driver’s seat. I was so afraid that my kids would be scarred for life seeing their mommy down and out but they adapted (almost too) easily. They played barbies in my bed or read books snuggled next to me. Oddly, my six year old loved helping me clear out my mastectomy drains. My husband was the ultimate teammate on this journey, the best friend I could ever ask for, and the rock of our family. I loved him more and more every single day of this experience and still can’t believe the lengths he went to to show the depth of his love for me.  I took things one day at a time.  You can only do what’s right in front of you. Some days I researched until my eyes watered from staring at my computer screen and my throat hurt from talking so much about my situation. Other days, I lost myself in work or playing with my children. I took each surgery as it came, prepped as best as I could, recovered as patiently as possible, regained my strength wherever possible, and proved to myself that if I can do this, I can do anything.  And I can.  About Marissa Bailey Marissa lives in Charlotte, North Carolina with her three children (Olivia, Emma, and Cameron) and her two doodles (Mila and Kaia). After years of working in media and entertainment, she is taking a professional break to focus on the next phase of her recovery: prioritizing her physical, emotional, psychological, and spiritual growth. As she starts thinking about her next chapter, however, she is confident it will involve supporting and empowering women.

Surgery is a Standard Component of Treatment for Most Breast Cancer Patients Surgery is often used in combination with other forms of treatment, which may include chemotherapy , immunotherapy, endocrine therapy, and radiation therapy . Sometimes surgery is recommended before other therapies. In other circumstances, chemotherapy will be recommended before surgery. This decision depends on the specific subtype of breast cancer as well as the breast cancer stage among other factors. Surgery involves removing the breast cancer with an operation and oftentimes involves surgical evaluation of the lymph nodes under the arm. In most scenarios, there are two options for surgery: breast conserving surgery or mastectomy.   Different Surgical Options: Breast Conserving Surgery, Mastectomy, and Axillary Lymph Node Surgery Breast conserving surgery Breast conserving surgery (BCS), also known as lumpectomy or partial mastectomy, is surgery to remove breast cancer and a small amount of normal, healthy breast tissue that surrounds the cancer. The goal of BCS is to remove all the breast cancer and preserve the remaining health breast tissue. BCS is an option for most early-stage breast cancers. Studies indicate that BCS followed by radiation therapy results in equivalent survival and is as effective in preventing a recurrence of breast cancer as removal of the entire breast (mastectomy) for early-stage breast cancer. It is important to understand that not every breast cancer patient is a candidate for BCS. Specifically, patients with large cancers, multiple cancers, prior breast or chest radiation, specific genetic mutations, or history of a chronic inflammatory conditions such as systemic lupus erythematous or scleroderma may not be good candidates for radiation. In BCS, patients retain most of their breast tissue including the nipple in most scenarios as well as sensation to the skin of the breast.   Mastectomy Mastectomy is a surgery to remove the vast majority of tissue from a breast, including the cancer site. Classically, a mastectomy includes removing the breast tissue as well as breast skin and the nipple. In these settings, closure is generally performed by the breast cancer surgeon in a flat fashion. More recently, newer surgical techniques allowed for preservation of the breast skin and nipple. In these settings, surgery is most commonly performed in conjunction with a reconstructive plastic surgeon. It is important to know that the reconstruction may involve more than one surgery. Patients may elect to have removal of just the breast with cancer in it, which is called a unilateral mastectomy, or they may elect to have both breasts removed, which is called a bilateral mastectomy. In many cases, patients that undergo mastectomy for the breast cancer may not require radiation. Scenarios where radiation may still be recommended are if there is cancer in the lymph nodes, the tumor is very large, or if there is cancer at a margin on the mastectomy specimen. It is important to understand that a mastectomy, even with reconstruction, is different from a breast augmentation. Sensation to the breast skin and nipple will be permanently altered. In most scenarios, a drain will be placed as well to prevent fluid accumulation. The drain tubes are sewn into place, and the ends are attached to a small drainage bag or bulb. These stay in place about 7-14 days on average and help speed the healing process.   Axillary lymph node surgery The first place that a breast cancer spreads in most cases is the lymph nodes that live beneath the arm in a space call the axilla. Surgical evaluation of lymph nodes is a common secondary component to breast cancer surgery. For many breast cancers, the surgical team may recommend a “sentinel lymph node biopsy.” In this procedure, the surgeon will remove between 1-4 lymph nodes. These nodes will then be sent to the pathologist (another physician) who will assess the lymph nodes under the microscope to make sure that the cancer has not spread. If a patient elects to proceed with BCS, a separate small incision is usually required to access the lymph nodes. If a patient is undergoing a mastectomy, usually no additional incision is required. Sometimes, if the cancer has spread to the lymph nodes, a “complete axillary dissection” may be recommended. This involved removal of more lymph nodes from the same area.   How to Prepare for Breast Cancer Surgery Before surgery, patients meet a breast cancer surgeon. The surgeon explains treatment options and what to expect from surgery. Patients can prepare for this meeting by creating a list of questions to ask. Below are some examples: What are options for breast cancer surgery? How much breast needs to be removed? What are the options for reconstruction? Can the reconstruction be started at the same time as the cancer surgery? How will the breast look after surgery? Will the breasts look the same? How much time will be spent in the hospital? How much time is needed for recovery? What are the activity restrictions after surgery? When is it safe to return to work? Additionally, optimizing sleep , nutrition , and emotional well-being before surgery can benefit the recovery process.   What to Expect with Breast Cancer Surgery For BCS, patients generally spend about a half day at the hospital before going home (“outpatient surgery”). Patients meet with the nursing staff, the anesthesia team, and the surgeon prior to going back to the operating room. In many cases, patients also will need to meet the radiology team to have the cancer “localized” prior to surgery. Localization means that the radiologist will place a wire or device into the cancer location so that the surgeon can find it easily in the operating room. The surgery itself lasts between 1-2 hours and then patients will recover in the post-operative recovery area prior to being dismissed to go home. For mastectomy, patients will either be able to go home the same day or may stay in the hospital overnight, depending on your surgeon and hospital’s policies. Like with BCS, mastectomy patients will meet with the nursing staff, the anesthesia team, and the surgeon prior to going back to the operating room. The mastectomy itself is variable in terms of time and depends on if the case unilateral or bilateral, if it is skin-sparing or nipple-sparing, and if there is a reconstruction portion with the plastic surgery team. For either surgical approach, patients will need to stop eating prior to the surgical date. In most cases, a patient will be asked to not eat after midnight before surgery. It is also very important to inform the healthcare team about any medicines, vitamins, or supplements being taken as these can sometimes interfere with the surgery. In many scenarios, patients will be asked to stop their blood-thinning medications to decrease the risk of bleeding. It is also very important to arrange a transportation plan for after surgery, as patients who have undergone surgery are generally recommended against driving for a period of time. After surgery, the surgical team will call once the final pathology results are available. This takes about 1-2 weeks.              Risks of Breast Cancer Surgery While breast surgery is overall lower risk than many other surgeries, there are still some risks of which to be aware: Bleeding. For BCS or mastectomy, this presents usually within 24 hours after surgery. Large swelling, increased pain, and bruising are signs and symptoms to watch for. Rarely, the surgical team has to take a patient back to the OR to stop the bleeding. Collection of fluid at the operative site, called a seroma. Infection. Pain. Scar. Anytime an incision is made in the skin, a scar will be present afterwards. Problems with wound healing. Risks related to anesthesia include confusion, nausea and vomiting. For lymph node surgery, patients may notice a change or loss of sensation on their inner arm and potentially arm swelling (called “lymphedema”) Positive margins. It is possible that the surgeon may recommend returning to the OR to remove more tissue if cancer is close or involving one of the margins after surgery. About Dr. Robert Pride Dr. Robert Pride is a breast surgical oncologist specializing in breast cancer, high-risk breast lesions, and benign breast disease. He was a Division I athlete at Dartmouth College before attending the University of Central Florida College of Medicine for medical school . He completed his general surgery residency at the prestigious Mayo Clinic in Rochester, MN. He then completed fellowship training in breast surgical oncology at the Harvard Medical School hospitals in Boston, MA which included Massachusetts General Hospital , Brigham and Women's Hospital , and the Dana Farber Cancer Institute . He has published numerous articles and book chapters about breast disease and has presented at several major national breast conferences. He was born and raised in Colorado and joined Western Surgical Care in 2023. He practices at Sky Ridge Medical Center in Lone Tree.

5 years breast cancer survivor It's hard to believe that I am 5 years out from my initial breast cancer diagnosis. Through all the decisions that I had to make and treatments that I chose to endure, I discovered an inner strength I never knew I had. It was difficult to identify with this "new normal" of being a cancer survivor, considering pre-cancer diagnosis, I led a very active and healthy lifestyle. I had mixed emotions of joy and relief after my last doctor's appointment but also felt anxious and fearful of a recurrence .  Healing my body and mind Slowly, as my body healed, I worked on my mindset to not only survive but thrive in this next chapter of my life. I had to work on replacing the fear and anxiety with more positive thinking. It's been helpful to practice mindfulness and engage in activities that allow me to share my story and feelings. Through this connection with others, I find hope, strength and determination to embrace life more fully. I find joy in the little things and do what I can to share those moments so that others may enjoy it.  How integrative medicine has helped me Integrative medicine has been instrumental in supporting my journey through remission. Embracing a holistic approach has helped me navigate both the physical and emotional aspects of recovery. Here are some lifestyle aspects I recommend incorporating into your life as your body allows: Nutrition :  Focus on fueling your body with healthy foods such as lean meats, whole grains, fresh fruits, and vegetables to support overall health and recovery. Physical Activity:  Engage in regular physical activity that matches your energy levels and physical capabilities. Setting and achieving personal goals, like qualifying for a marathon, can be incredibly empowering and beneficial for your overall well-being. Complementary Therapies:  Consider integrating complementary therapies such as acupuncture or massage therapy. These can help manage stress, alleviate symptoms, and enhance your overall sense of well-being. Stress Management:  Practice stress-management techniques such as mindfulness, meditation, or yoga. These practices can help maintain emotional balance and reduce anxiety related to remission. Sleep:  Ensure you prioritize good sleep hygiene. Adequate rest is crucial for healing and maintaining your physical and emotional health. Relationships:  Cultivate and nurture supportive relationships with friends, family, or support groups. Positive social connections can provide emotional support, encouragement, and a sense of community. By incorporating these practices into your daily routine, you can support your ongoing journey through remission and enhance your overall quality of life. Fortunately today, I am in remission but I know that is not synonymous with a cure. I focus my mind to appreciate what each day brings and do what I can to feel at peace and spread that feeling to others. I am grateful to be thriving and leading a very fulfilling life. About Dr. Maria Cayelli Dr. Maria Cayelli, MD , is Board Certified in Family Medicine and trained in Integrative Medicine. She's part of The After Cancer Care Team  and she assists patients in exploring the best of modern medicine as well as evidence-based complementary therapies to empower them with individualized medicine.

From my personal experience, the similarity between climbing Mount Kilimanjaro and the experience of cancer survivorship is overwhelming .   When you first hear the word “cancer”, the immediate thoughts that run through your mind include “I can’t do this”, “fear”, “overwhelmed”, and “scared” which are recurrent thoughts during different stages of the route to climb Mtn Kilimanjaro. Even the thought of death sneaks into your mind as you assess some of the scary portions of the Kilimanjaro climb, which is certainly a big part of the cancer experience.  Gather your gear list The first phase of preparing to climb Kilimanjaro is gathering your needed gear list.  The first phase of cancer diagnosis has a similar stage:  gathering CT/MRI scan results, lab results, physical exam, and biopsy/pathology results.  Once you have all your information and equipment you are ready to select your route and proceed with the journey. Take one step at a time On the Kilimanjaro climb, you only take one short slow step at a time with all your attention on where you will place your foot for the next step.  Your attention cannot waiver to even enjoy the surrounding scenery for fear of a miss-step.  If you look ahead (i.e., worry about what comes next) the path seems daunting and unachievable but with your head down and focused on each moment, you make the day’s journey one small step at a time.  Our African guides continuously reminded us to “pole, pole” which is Swahili means "slowly, gently, softly, quietly; be calm, take it quietly. Ask for assistance On the Kili climb, you have guides, which advise you and lead you on the correct path at the correct speed.  In survivorship, our guides are our physicians and navigators.  Near the summit it was so cold that at times I needed my guide to help me with the simple task of putting my gloves back onto my hands.  In cancer, you often have to ask for assistance with the simple tasks of life. Get support On the Kili climb, you have porters, whose job is to carry all your needed equipment (tents, food, equipment, luggage, etc.).  In survivorship, we have many resources to help us carry the load – such as oncology nurses and nonprofits. Surround yourself with people who encourage you On the Kili climb, we have our teammates who help encourage, motivate and inspire us each day.  In survivorship, we have our friends and other survivors who play this role. Share the experience Finally, we have our tent-mates on the climb and in survivorship we have our family who are there with us day and night, minute by minute, even when we are weak, tired and dirty – they are there to share our lives and experience. While climbing Kilimanjaro, your body and mind has to continually adjust to smaller amounts of available oxygen as you reach higher altitude, which often leads to fatigue and shortness of breath. The journey through cancer survivorship often leaves you feeling the exact same way! So while both “mountains” seem insurmountable, by taking small slow steps with the help of guides, porters, teammates and tent mates – if you “pole, pole” – then you will indeed reach the summit of whatever mountain you are facing!  So thank you Kilimanjaro for teaching me another valuable lesson regarding life and cancer survivorship! “Pole, Pole ya’ll". About Dr. Chasse Bailey-Dorton Dr. Chasse Bailey-Dorton, MD  is a 21 year breast cancer survivor and the Medical Director of The After Cancer. Her mission is to provide reliable information for someone with a cancer diagnosis, being treated for cancer, recovering from treatment, seeking cancer recurrence risk reduction strategies, or at high risk for cancer.

Hearing "you have cancer" In May of 2014 I was told something no one should ever hear, “you have cancer”. The path to write this 10 years later was not linear, it was filled with challenges from my diagnosis Stage 4 NSCLC to negative thoughts such as anger, anxiety, sadness and sorry. I was at the lowest point of my life, but survival was driving everything I did. Life is about momentum and that propelled me to find my path. Joining an immunotherapy clinical trial Because I felt a traditional path of treatment was not for me, I researched clinical trials and found that Duke had one underway for a new treatment called immunotherapy, with a bit of luck I fit the profile of what they needed, non-small cell lung cancer with no mutations. After 14 months of infusions with optivo and yervoy my tumors reduced in size to a point where if they did not grow, I would be considered in remission. I now get yearly MRI/ CT scans to ensure it does not return. Getting treatment was easier than the aftermath For me this was the easy part, the total focus on treatment and survival was the journey. The hard part for me was dealing with the aftermath of the trauma inflicted. Everything was different and the new path was unknown. I was finally able to dwell in the gratitude of having a second chance and the way I found to maintain this good feeling was getting involved in issues I cared about and giving back by volunteering . Exercise and eating well was not enough. Getting involved with Lung Cancer Initiative Getting involved with Lung Cancer Initiative was important for my mental health, I was able to meet other survivors who had gone through a similar experience and hearing their stories about their journeys really put things in perspective for me. It let me know I was not alone and many of their stories were much worse than mine. I know that sharing my story helped others as well.  Cancer research has come a long way in just the last 10 years from immunotherapy to targeted therapy it has helped many survive what 20 years ago would have been a death sentence. The research grants that LCI provides is one of the many ways they support cancer research and the cancer community.

Lung cancer awareness and support events offer invaluable opportunities for patients, survivors, families, and communities to come together, educate, and raise funds to combat lung cancer. North Carolina hosts several impactful events, blending community engagement, education, and awareness. Here’s a look at some of the top lung cancer events in the state, each offering unique ways to get involved, learn, and support those affected by lung cancer. 1. Updates in Lung Cancer: Community Education Event Date: November 7th  from 12:00 p.m. until 1:30 p.m. Location : Atrium Health Levine Cancer Institute Click here for more info This educational event provides the latest updates in lung cancer treatment and research, featuring talks from experts and healthcare professionals. Participants gain a deeper understanding of advancements in lung cancer therapies and current research trends, which are invaluable for patients, caregivers, and anyone affected by lung cancer. It's an excellent opportunity to learn directly from experts about ongoing progress and emerging treatments, making a significant impact on the way communities approach lung cancer care. 2. Jodi Kovach Memorial 5K Date : November 10th Location : Forest Hills Park, Durham, NC Click here for more info The Jodi Kovach Memorial 5K celebrates the life and legacy of Jodi Kovach, who courageously battled lung cancer. This race is a community-driven event with proceeds going towards lung cancer research and support services. Runners, walkers, and families gather in a supportive and fun atmosphere, making it a meaningful experience for everyone involved. Participating in the 5K not only raises awareness but also contributes directly to lung cancer research, honoring those who have been impacted by this disease. 3. Survivor Engagement Event Date : November 14th Location : Online Click here for more info This annual event celebrates lung cancer survivors, bringing them together with supporters for an inspiring day of connection and empowerment. Activities focus on survivor stories, shared experiences, and resources for ongoing support. Events like these foster a strong sense of community, where survivors and their loved ones can engage in meaningful discussions, gain support, and inspire one another. It’s a powerful reminder of resilience and hope, offering survivors a space to connect and thrive. 4. All In to Fight Cancer Raleigh Event Date : November 21, 2024 Location : The Ritz, Raleigh, NC Click here for more info This exciting annual fundraiser event gathers the community for a night of entertainment, awareness, and fundraising for lung cancer and other cancer types. Held at The Ritz in Raleigh, the “All In” event includes live music, games, and opportunities to learn about local cancer initiatives. With a focus on community involvement and support, this event combines fun with purpose, drawing in diverse groups all committed to the cause. Funds raised go directly to support cancer research and patient care, making a difference in the lives of North Carolinians affected by cancer. 5. Hockey Fights Cancer - North Carolina NHL Date : November, 2024 Location : NHL Arenas across North Carolina Click here for more info Hockey Fights Cancer is an annual NHL initiative where hockey teams across the nation, including in North Carolina, raise awareness and funds for cancer patients. Teams wear special uniforms and engage fans with activities that highlight cancer awareness, making it a memorable event for hockey enthusiasts and families. The event showcases the sports community’s commitment to fighting cancer and provides a platform to educate fans on cancer prevention and early detection. For anyone who loves hockey, it’s a chance to support a great cause while enjoying the sport. Each of these events provides unique ways to support and raise awareness for lung cancer in North Carolina. Whether through education, community engagement, or physical activity, these gatherings reflect the dedication of communities and organizations in the fight against lung cancer. By attending, donating, or participating, we can all play a part in bringing hope, knowledge, and support to those affected by lung cancer.

Chemotherapy was born from the ashes of war. The first drug used as a chemotherapy agent came from an unexpected source: mustard gas, a highly toxic substance and one of the most effective weapons ever developed. The gas that was first used during World War I and has a long history as a chemical weapon also served as the molecular basis for the first chemotherapy agent, known as Mechlorethamine. A history that is a subtle invitation to understand the nature of cancer treatment from its burdens, very well represented by Mechlorethamine, to its success. From its beginnings to the present day, cancer treatment has been marked by numerous side effects, but that is a reality that is slowly changing. To raise awareness for Lung Cancer Awareness Month , let’s briefly tell the history of how lung cancer treatment is becoming a showcase of 21st-century discoveries. Mechlorethamine and the nature of chemotherapy Great things can arise from tragedy. In an effort to understand how mustard gas affected the human body, autopsies were performed on 75 soldiers exposed to it. These autopsies revealed a significant reduction in white blood cells in the soldiers. Apparently, when inhaled, the gas was especially toxic to white blood cells. This led to the hypothesis that a similar substance might be used to target cancerous white blood cells in lymphoma patients. Goodman and Gilman, two of the greatest pharmacists of all time, in their lab at Yale, designed a chemically altered version of mustard gas. When tested on a terminally ill lymphosarcoma patient, the drug yielded fantastic results, destroying cancer cells like never seen before. Mechlorethamine is still in use today under the interesting name "Mustargen".  Mechlorethamine became the first chemotherapy agent, marking the beginning of decades of investment and discovery in cancer treatment. However, like the many chemotherapy drugs that followed, it comes with significant side effects, and there is a reason for this.  Pharmacology is about specificity, which means targeting specific disease mechanisms while minimizing effects on other systems in the body. This approach works well for bacteria, for example, as their cellular structures differ from ours, allowing for targeted drugs. But cancer presents a unique challenge, as cancer cells are, at their core, human cells. How, then, can we target cancer cells without harming healthy cells? Truthfully, throughout most of cancer treatment history, we couldn’t. Most chemotherapy drugs target molecules involved in cell reproduction, which, although also present in normal human cells, are more active in cancer cells. That is the reason why chemotherapy has so many adverse effects.  But there is a promising future ahead This was the reality until things began to evolve near the 21st century. Cancer treatment has transformed in extraordinary ways. As we studied cancer in greater detail, we discovered genetic alterations, proteins, and receptors that are unique or more active in cancer cells. This understanding allowed us to develop drugs targeting these specific traits. We call this "targeted therapy," a broad and somewhat loosely defined category of drugs that aim for these unique cancer-specific characteristics. With targeted therapy, we can focus on attacking cancer cells directly, sparing more of the healthy cells. One of the most exciting examples of targeted therapy’s impact is seen in treatments for Non-Small Cell Lung Cancer (NSCLC), which accounts for 85% of lung cancer cases. Several key mutations have been identified in NSCLC, and therapies designed to target these mutations have shown remarkable clinical success. Genes like EGFR, MET, ALK, RET, and HER2 frequently exhibit mutations in lung cancer, and specific drugs have been developed to target these abnormalities. For instance, a patient with an EGFR mutation (found in about 15% of cases in the U.S.) can receive a treatment designed to target that specific mutation. As cancer cells evolve to resist EGFR inhibitors, science has kept pace by developing second and third-generation drugs to outsmart this resistance. Immunotherapy has also emerged as a first-line treatment for certain types of lung cancer. Immune checkpoint inhibitors are a novel category of Immunotherapy drugs that enable the body’s immune system to attack lung cancer. Normally, cancer cells evade immune response by sending "don’t attack" signals to immune cells. Immunotherapy drugs block these signals, allowing the immune system to recognize and target the cancer. It’s like lifting a disguise, enabling the body to fight back with its own defenses. For some lung cancer patients who have the specific receptor that these drugs aim for, this approach can lead to lasting remission. This highly specific treatment means that some patients may completely avoid common chemotherapy-related side effects, such as hair loss. Since the prevalence of these mutations varies among patients, genetic testing has become essential in identifying them. This is why modern lung cancer treatment includes a comprehensive set of genetic tests, enabling doctors to tailor therapies to each cancer’s unique genetic profile. The vision of personalized therapy is no longer just a dream, it’s becoming a reality. Over the past decades, these advancements have led to changes in what truly matters: significant improvements in overall survival and reductions in mortality. The two-year survival rate among men with NSCLC improved substantially, from 26% for those diagnosed in 2001 to 35% for those diagnosed in 2014. Mortality declined by 3.2% annually from 2006 through 2013, then decreased even more rapidly, by 6.3% annually, from 2013 through 2016. Conclusion  These may not be the enormous gains some might expect, but given that lung cancer remains one of the most common cancers in the U.S. with nearly 250,000 cases per year, this progress represents thousands of lives each year. Though we've focused here on lung cancer , similar advancements are transforming treatment for other cancer types as well. As our understanding of cancer deepens, we’re developing drugs with greater precision to target cancer’s unique vulnerabilities, allowing us to combat the disease in ways we never thought possible. Lung cancer research, in particular, is a beautiful showcase of this new generation of therapies that improve survival rates and enhance quality of life. This progress not only saves lives but brings us closer to a future where cancer can be managed with minimal impact on patients’ daily lives. Written by Luis Guilherme

I don't write enough about mental health so here goes. IT'S VERY IMPORTANT!!!!! This post is going to cover two things. First, my search for a therapist . And second, the state of my mental health and how it impacts me. My search for a therapist Ok, on to the first. Everyone knows the story of Goldilocks, right? This bed is too hard, this bed is too soft, this bed is juuuuuuuust right! Well, that's been my therapy journey (I am not a fan of the word "journey" (overused) but it works here). My first therapist in Portland was very helpful. He helped me get a lot of insights and connected a lot of dots for me. He also gave me perspective when I needed it. Example: Not to be morbid, but when the cancer thing started we discussed death. As I was talking about it, his response was "We are all going to die and no one knows when". That kind of snapped me back to reality. He also helped me realize that I am not afraid of dying, but I am afraid of not living. Two very different ideas. BUT, he never spoke (or very little). Like literally. I would walk in and he wouldn't say anything. For those who know me, I am very chatty. It was almost always awkward and the awkwardness got me to talk more and to process. I would not look forward to it and found myself worried about what I would discuss in every session. He was too hard. My next therapist was the exact opposite. Very nice, empathetic, chatty, and easy to talk to. BUT, she didn't challenge me at all. She wouldn't use things that I had said in the past to connect ideas, wouldn't call me out on bullshit, etc. We discussed it (I am very honest) but we still couldn't get there. She was too soft. So now, I am looking for juuuuuuuuuust right. I think I found her. I will let you know soon. She seems to have good energy, seems very honest, and seems like she will listen to me and push me. After all, if you leave a therapy session and feel like it was easy, it's worth questioning the value of the session. One thing I like is that when we spoke (I now interview therapists to see if it feels like a fit before I commit) I asked her if she wanted to see my blog or anything else. She said no, she wants to know how I am in the moment and to discuss that. I liked that approach. So fingers crossed! And, she's a NYer. And I seem to gravitate to that energy. It's the right amount of humor, directness, no BS, and insight. My mental health state Now let's discuss my state. A few weeks ago, I was mopey. I don't know how Krista did it but I couldn't have been fun to be around. I wasn't mean, depressed or anything, I just didn't have my usual energy. I started to realize it last week. Once I realized it I decided to do something about it (this wasn't one of those, "it's okay to be down" feelings, it was more "I am bored and need to do something different"). So I went to the gym , I hiked twice (5 miles on a beautiful trail and 6.3 miles in Forest Park (look it up, it's amazing), went to the beach and I went skydiving. Guess what? I feel much better. I am back to pushing myself and doing different things. I am happier, more engaged, and feel better. Now I am working on the house and planning trips. There isn't one neat bow to tie around this post other than just to say that my mental health is what drives me. I focus and spend more time on my mental health, than I do on treatments. And it works. When I am feeling good mentally, I feel good physically. My guess is that 60-70% of my time is focused on my mental health through activities, music, writing, walking, therapy, etc. There are 10,080 minutes in a week and 40,320 minutes in 4 weeks. My physical treatment is a shot that takes 30 minutes once every 28 days (4 weeks), which leaves a lot of time to focus on my mental state. I am beginning to let that sink in.

A call that changed Christmas It was Christmas Eve in 2018, and as I was on the way home from my last-minute Christmas shopping, I received a call from my pulmonologist.  While I knew she would call me any day now, just as soon as she received back my lung biopsy results, I pulled my car over, took the biggest breath and accepted the call. After so many doctor visits and doubts that lung cancer would be the finding (given my age and smoking history), it was official, my lung biopsy indicated that I had lung cancer . I didn’t understand the importance of it at that moment, but my doctor also shared the “good news” that there was biomarker testing conducted, and it revealed that I have an EGFR mutation.  We ended the call with a plan to come in and meet with a thoracic surgeon, something she arranged that same day. We ended the call, a I found myself parked in a spot where I have no doubt I was meant to be, at the church that is just down the road from my house. I remember feeling numb, frozen with so many emotions but then I looked over at the church and shifted to prayer. I prayed for strength and peace, especially for my children. Thankful that I had this private moment to receive the news and gather strength for what was to become my new life. Starting cancer treatment Just after Christmas, a few days into the New Year, I had my surgery which included a br onchoscopy, mediastinoscopy, right lower lobectomy, thoracic lymphadenectomy. The biopsy from this surgery indicated I had Stage IIB Adenocarcinoma.  After recovering from the surgery, I completed 4 cycles of adjuvant chemotherapy by May 2019. Due to having chronic pain and many other issues, I had a PET scan  on 2/3/23, which showed that I had bleeding lesion in my brain, spine, scapula, sacrum, and other lymph node avidity.   First course of treatment was having a craniotomy followed by SRS radiation.  Following the surgery and radiation in April 2023, I started taking Tagrisso which is a targeted therapy to treat lung cancer with specific mutations. I have had a positive response, with my recent scans showing “Stable to slight improvement with NO recurrent disease”.  Learning I had cancer was what I have come to see as a gift Looking back on what felt like was a very hopeless day on Christmas Eve in 2018, I can honestly say that learning I had cancer was what I have come to see as a gift . While there have been many difficult moments, when things seemed dire, HOPE has kept me going and with gratitude for the gift of life and the countless blessings. There’s a phrase I say (and live) daily, “progress over perfection”. These three words strengthen me and remind me to focus on what I can do NOT what I can’t. No day is promised, and I wake each day with so much gratitude and hope! Lung cancer resources Lung Cancer Initiative (LCI) and LiveLung have been two of the organizations offering wonderful support and hope. In addition to their boundless support through survivor engagement, fundraisers, research and advocacy, LCI connected me with Wind River for the Lung Cancer Retreat, the beginning of what has come to be the most meaningful friendships and connections.  The gift of support Sometimes we just need someone to be there, not to fix anything or do anything in particular, but just to let us know we are supported and cared about.  The gift of having this support helped me learn to live post diagnosis, during and after treatment and in between each surveillance scan .  My words of hope I’d like to share with all survivors and caregivers, is to REMEMBER TO LIVE WHILE YOU’RE BUSY SURVIVING!

If you're seeking a straightforward answer, here it is: Teflon and most non-stick cookware are generally regarded as safe for kitchen use under normal cooking conditions. However, the reality is more nuanced. While Teflon itself is stable and non-reactive at standard cooking temperatures, concerns arise from the chemicals involved in its production, which may pose health and environmental risks. To understand these concerns better, let’s clarify a few key terms. Teflon, technically known as polytetrafluoroethylene (PTFE), is a synthetic resin popular in a wide range of industrial applications, including non-stick cookware, due to its slick, non-reactive surface. Developed and patented by the American company DuPont in the 1940s, PTFE quickly became a household staple for its convenience in cooking. In producing Teflon, manufacturers often use chemicals known as PFAS (per- and polyfluoroalkyl substances). PFAS is a broad category of human-made chemicals valued for their resistance to heat, water, and oil. This group includes older substances such as PFOA (perfluorooctanoic acid) and PFOS (perfluorooctane sulfonate), as well as newer alternatives like GenX.  Is Teflon Safe? What Science Tells Us For years, scientists have been studying Teflon to find out if it’s safe for us to use. Testing this directly on humans would be unethical, so researchers have to rely on animal studies or look at people who are already exposed, like workers in Teflon factories. One well-known study exposed rats to super-heated Teflon (about 900°F or 486°C) for 15 minutes. The fumes released were toxic to the rats. But this finding isn't new, the toxicity of these fumes are well known. Cases of what has been called “Teflon flu” have been popping up in the news. It is well-accepted that overheating a non-stick pan can release fumes, which may cause flu-like symptoms that typically resolve within a day or two. Should I stop using Teflon pans then? No. One common factor in these studies and cases is that the pans were heated to extreme temperatures, far beyond what most people typically use in the kitchen and well above the manufacturer’s recommendations. Non-stick pans are safe as long as you follow the manufacturers recommendations and keep temperatures below 500°F (260°C). No health concerns have been found when non-stick pans are used as directed. Another method used to evaluate safety is studying whether any harmful chemicals migrate from the non-stick coating into food. A study by the Central Science Laboratory in York, UK, tested 26 non-stick cookware samples by heating them to 250°C for 30 minutes, simulating typical kitchen conditions. Their findings? “None of the substances identified had the potential to exceed their tolerable daily intake (TDI) value”. In summary, based on available research, including several studies, there is no evidence that Teflon escapes from cookware in substantial amounts and poses any health risk.  When it comes to Teflon potentially leaching into your food, following the manufacturer’s recommendations is key. Non-stick cookware doesn’t last forever; once you notice scratches or peeling on the coating, it’s time to replace it. To help extend the life of your non-stick pan, use wooden, silicone, or plastic utensils and wash it gently by hand. The Real Concern: Manufacturing Chemicals The real concerns stem from the production process of Teflon and the chemicals involved, such as PFOA (perfluorooctanoic acid). PFOA is known to disrupt hormones and has been classified by the International Agency for Research on Cancer (IARC) as possibly carcinogenic to humans. It is highly persistent in the environment, and as of 2011, PFOA was found in the blood of nearly 95% of Americans. With a half-life of several years in the body, PFOA raises concerns about long-term health effects, including potential links to cancer. Workers at manufacturing sites for these chemicals have been found to have a higher risk of developing certain types of cancer. Studies examining cancer rates in individuals living near or working in PFOA-related chemical plants have suggested an increased risk of testicular and kidney cancers with higher PFOA exposure. The contamination of water sources by these chemicals remains a significant and unresolved issue. Due to these concerns, PFOA has largely been replaced by other chemicals, such as GenX. You might wonder, 'So, is the problem solved?' Not exactly. The chemicals replacing PFOA still belong to the same category, PFAS. GenX is one of these alternatives, and while it's less likely to accumulate in the body, concerns remain. Some studies suggest that these newer chemicals may pose similar health risks as their predecessors. Conclusion In conclusion, if you’re wondering whether non-stick cookware is safe to use for your Thanksgiving cooking, the short answer is yes—it’s safe to use under normal cooking conditions. There has never been any evidence that Teflon, when used under normal cooking conditions, poses a health risk. As long as you follow the manufacturer’s guidelines—keeping temperatures below 500°F (260°C) and replacing pans if the coating shows signs of damage—non-stick pans are safe to use. However, the story doesn’t end there. The main risk associated with Teflon isn’t from using it in your kitchen; it’s an environmental and production-related issue tied to the chemicals used to make it, like PFOA. These chemicals have been shown to contaminate water sources and persist in the environment for years, raising long-term health concerns, especially for communities near manufacturing sites. While Teflon itself is safe for cooking when used correctly, the impact of these manufacturing chemicals on the environment and human health remains a serious concern.  Written by Luis Guilherme