The After Cancer Blog

Caregiver Mental Wellness , Inc. empowers caregivers to thrive and find balance in their caregiving journey, envisioning a world where caregivers’ mental and emotional well-being is prioritized, and where compassionate support and understanding is readily available in families, among friends, in communities, and our workforce. Long Distance or Distance Caregiving: In an era characterized by globalization and mobility, the traditional concept of caregiving has expanded beyond geographical boundaries. Distance caregiving has emerged as a significant aspect of contemporary family dynamics, challenging individuals to provide support and care for their loved ones from afar. This paradigm shift is fueled by factors such as career opportunities, educational pursuits, and the general dispersal of families across the globe. Distance caregiving, also known as long-distance caregiving, refers to the scenario in which individuals provide support and care for their family members or friends who live in a location that is not accessible. This type of caregiving is not limited to a particular age group or health condition; it spans various situations, including aging parents , supporting a friend with a chronic illness, or ensuring the well-being of a sibling or child living in a different city. The concept of distance caregiving is on the rise. Limited research indicates that caregivers in such situations are grappling with notable anxiety and distress , prompting the need for nursing intervention. Historically, healthcare providers have not effectively addressed the specific needs of these distant caregivers or integrated them into family-centered, quality cancer care. The omission of their involvement in the patient's care plan and the adbsence of supportive interventions inadvertently complicate medical decision-making in clinical settings, especially during challenging phases of the patient's illness trajectory. This includes the difficulties of results of scans for cancer status, chemotherapy treatments, treatments for other health conditions, and the devastating report of the advancement or return of cancer the family thought was improving. This article discusses some of the distant caregiver’s challenges, the possible complex emotions experienced by the distant caregiver, steps that may be taken to alleviate these feelings, and strategies that may support a smoother process for all participants involved in the care recipient’s journey. Distant Caregivers’ Challenges: Part-time distant caregivers often coordinate with health professionals or other family caregivers living near the recipient. These distance caregivers face numerous challenges including, but not limited to: Limited Physical Presence: Their inability to be physically present for day-to-day care, emergencies, or routine activities. This absence may lead to guilt, helplessness, and frustration for the distant caregiver. Communication Barriers: Communication becomes crucial. Time zone differences, busy schedules, and technological challenges may hinder regular updates and check-ins. The caregiver may have meetings at work and cannot be on Zoom or telephone calls to stay in the loop on the care of the loved one. Misunderstandings may arise due to the lack of in-person conversations and non-verbal communication. Navigating Healthcare Systems: It is hard enough for a local caregiver, much less a distant caregiver, to coordinate medical care, and it can be complex at a distance, especially when dealing with different healthcare systems, insurance policies, and providers. Obtaining accurate information about the care recipient, tracking care, scheduling appointments, or coordinating cancer treatments can be a daunting task. Sustaining Their Other Responsibilities in Life: These distant caregivers have multiple responsibilities in life that may include a stressful job, other children in their home to take care of, a special needs child, nurturing their partner, maintaining their social activities and friend relationships, and last, but not least, maintaining their own well-being. Caregivers’ Complex Emotions: Distance caregivers often undergo a range of complex emotions as they navigate the challenges of providing support and care from afar. The emotional landscape can be multifaceted, influenced by various factors such as the nature and seriousness of the cancer patient’s condition, the caregiver’s personal circumstances in their immediate family and their work situation, and the effectiveness of the caregiving arrangements and collaboration with the other caregiver’s and/or health professionals’ team. Nursing interventions have the potential to alleviate the unnecessary suffering and distress experienced by distance caregivers who often feel disconnected from the oncology team. A crucial step involves inviting the distant caregiver to be part of the care plan, laying the groundwork for a trusting relationship, and offering essential emotional support. Providing educational resources and guiding them to relevant websites can offer both practical and emotional support from a distance. Innovative technology is an additional connection when distant caregivers cannot physically visit the patient, including the mother, father, sibling, adult child, or close friend who would like to participate in a physician's office or treatment visits. By equipping these distant family members with knowledge about their role and facilitating much-needed support and collaboration, they can become valuable support for the cancer patient and local caregivers, ensuring success in their part-time caregiving responsibilities. Some common emotions caregivers may feel include: Guilt for being unable to be present with hands-on care, attend medical appointments or treatments or handle daily responsibilities. They feel the guilt of not doing enough and stress that the primary local caregivers may be overburdened with their loved one’s care responsibilities. Other friends and family members need to consider that the local caregiver deals with the situation daily. They should have a clearer understanding of the needs and situation involving the care recipient. Distant caregivers should be compassionate and cooperative to keep a sustainable and effective working relationship and collaboration with care partners. Helplessness for the inability to immediately respond to emergencies or be there for their loved ones in times of need can create a sense of helplessness and frustration. Worrying about the well-being of the care recipient, especially when dealing with health issues or aging, can lead to persistent worry and anxiety. Worrying that local caregivers may feel that the distant caregiver is not carrying their responsibility. For example, the aging parent is ill, and siblings living near the care recipient must carry the day-to-day responsibility of the parent's care. When scheduling conflicts or misunderstandings occur, they feel frustrated when trying to coordinate care and communicate effectively with other caregivers and health professionals. Distant caregivers may experience a sense of isolation, as they may not have the same level of in-person support and shared experience as the local caregiver. Juggling the demands of distance caregiving with personal, professional, and other family responsibilities can create a constant sense of imbalance and stress. The emotional toll of caregiving, even from a distance, as a part-time caregiver can lead to exhaustion as caregivers navigate complex emotions over an extended period. Some distant caregivers may feel relief and satisfaction despite the challenges. Caregivers may also experience moments of relief and satisfaction when they successfully coordinate care, address issues remotely, coordinate effectively with other local caregivers, or witness positive outcomes for their loved ones. The distant caregiver may feel more connection and fulfillment, maintaining emotional connection through regular communication with the local caregivers, the care recipient, and the health professionals, even when distance is a barrier. It is important that distant caregivers remain adaptable. They often need to be highly adaptable, adjusting their plans and strategies as their loved one's circumstances change, which can evoke a mix of emotions such as frustration or sadness. Trying to balance personal and professional commitments with caregiving responsibilities may lead to stress, anxiety, depression, sadness, and possibly caregiver burnout. It is important to recognize that emotions can vary widely among distance caregivers depending on the situation, including, but not limited to, the health status of the loved one, relationship dynamics within the family unit, communication and collaboration with the care recipient, healthcare team, and other caregivers who may be family or friends. It is essential to recognize that emotions vary widely among distance caregivers, and individual experiences are unique. Open communication, support networks, and prioritizing self-care and well-being are crucial to coping with the emotional challenges of providing care from a distance. Strategies for Successful Distance Caregiving: It requires forethought and planning regarding communication, utilizing technology, building a support network, and planning visits strategically. By doing this, it establishes a workable, stress-reducing strategy within the distant caregiver's life and family situation, including their job. Within this strategy, attempt to sustain a harmonious collaboration with the caregivers who reside near the care recipient and the healthcare team or partners. Communication: Establish clear communication channels to foster open, honest communication with the care recipient and other involved family members. Get regular updates and have discussions that can help all participants understand evolving needs and challenges on this journey. Utilizing technology for virtual communication might include video calls, messaging apps, and emails, which provide a means to stay connected and engaged and reduce feelings of isolation. Utilize Technology: Coordinate with the healthcare provider and caregivers who reside with your loved one to discover what technology might be available for healthcare management, such as online medical records, appointment times, healthcare team names, and locations. Consider using telehealth consultations and possibly medication management apps. Set up smart home devices for remote monitoring and assistance. Of course, all these options may not be feasible because every situation is different. Build a Support Network: Depending on the situation, and as appropriate, connect with local friends, neighbors, and professional caregivers to provide on-site support for the loved one. Investigate and utilize local resources, such as home care services and support groups, possibly including your loved ones' friends at their faith-based and community organizations. Do research to find out about all the social services in the care recipient’s community. The healthcare organization can provide information on social workers. These resources can offer practical assistance, information, and emotional support to the care recipient and their caregivers. Plan Visits Strategically: In coordination with your loved one's local support team, coordinate visits to maximize the impact. Plan around significant events, medical appointments, or times when you, as the distant caregiver, can be most helpful to the care recipient and their local support network. When planning visits, consider coinciding with important events, medical appointments, or times of increased need. The local caregiver may need a break or getaway. You can support the local caregiver(s) by managing the care and being with your loved one while they rejuvenate. This time will allow you to assess the situation, provide hands-on support, and make necessary adjustments to the caregiving plan in coordination with the local caregiver and care team. Conclusion Distance caregiving is a complex and evolving aspect of modern life, requiring adaptability, communication, understanding, proactive planning, and collaboration with the care recipients’ support network. By acknowledging the challenges and implementing effective strategies, distance caregivers can provide valuable support and maintain a meaningful connection with their loved ones, even across vast geographical distances. As society continues to evolve, so must our approach to caregiving, ensuring that distance does not diminish the quality of care and support we can offer to those we hold dear. Coping with the emotional challenges of distance caregiving is an ongoing process that requires adaptability and resilience. The journey may be smoother by planning, discussing responsibilities to assign to the local caregivers and the distant caregivers, communicating with compassion and understanding, and seeking support and available local resources. By implementing these strategies and seeking support from both local and remote networks, caregivers can better navigate the complexities of providing care from afar.

Amanda is a Mother, Dentist, Coach, and Breast Cancer survivor. She owned her own dental practice for 10 years and now works part-time as a dentist while spending time with her blended family and helping others thrive.   It seemed as if I had finally overcome the hurdle After selling my practice and building for a nice profit I could feel the breeze of freedom in my heart and I was on the high of hope that comes with big changes. I was blessed with two wonderful children and had cut off the albatross of ownership finally taking care of some needs that had been put aside. This included paying off my car, fixing some issues that had been put off due to cost at the house, getting dry eye laser treatments, finally fixing a few health nuisances I had ignored, and taking some fun trips. Then I got the call. One of my dearest friends was diagnosed with breast cancer and had just started chemotherapy. Flying across the country to sit with her in the infusion room I realized how time had flown. Surviving COVID as a dental practice owner, finally getting through a divorce that took 6 years to end…. When did I have my last mammogram? Yes, it was negative when I had mine while we were shut down for COVID, but is it every year or every three years I am due? "Breasties" In 2023 my friend and I ended up becoming “Breasties”. It started with the radiologist coming into the room immediately after my first mammogram. There were 4 lesions and we needed a biopsy. The biopsy came back positive but with good news. We thought all I would need was a double mastectomy and reconstruction. However, the path report came back a few days after my mastectomy and there was invasion into the lymph node. Now a tumor panel agreed I would face chemo which involved 7 months out of work battling cancer and waiting for reconstruction . Full-time job of fighting cancer I had finally started working as an associate and I had to step away and take on the full-time job of fighting cancer. Sitting in the chemo chair facing a myriad of uncertainties throughout the process, I came to the shaking conclusion that I could not possibly emotionally handle working in dentistry again. This is similar to the burnout or mid-career crisis experience so many face in the medical world. I knew that I could never live my life the same again and that started with how I balanced my inner purpose with my clinical practice. I am now on the journey of recreating my life, my career, and how I feel peace and joy. Most of all I am growing the connections and relationships that foster joy on this journey in life. I have found a job doing dental work part time and I am working on some creative opportunities in my life while spending more time with my family. Grateful for the chains that have been broken and the joy to come Breast cancer was like a shot to the heart giving me a second chance in life. Having support groups and other pink friends is an important part of creating a strong foundation for life after cancer. I am grateful for the chains that have been broken and the joy to come .

Pelvic Pain One of the dearest subjects to my heart that has affected so many women who have come into my office to see me as a pelvic floor therapist has been pelvic pain. According to the NIH, chronic pelvic pain continues to affect 4-16% of the population of women. These are people who live the majority of their days having pelvic pain. Physical therapy can help patients with chronic pelvic pain and with intermittent pelvic pain. Some people are misdiagnosed for years with pelvic pain just because for them it is not present all the time. So they forget it exists until it returns again sporadically. Pelvic pain may also present in individuals who have different cancer diagnoses (ie. breast, uterus, bladder, cervical, abdominal cavity).  Pelvic pain also presents with diagnoses of endometriosis, dysmenorrhea (painful periods), painful bladder syndrome/interstitial cystitis. Some other diagnoses that cause pelvic pain may be irritable bowel syndrome, vulvar pain, vulvodynia, vestibulodynia, vaginismus, pelvic congestion, polycystic ovarian syndrome and pelvic pain due to undisclosed diagnoses after having a baby or a hysterectomy. Pelvic Pain and Intimacy Having pelvic pain can stress your marital relationships , place a strain on your mental health and even put you in a space of depressed mood. It can cause anxiety because you are not sure when it will return or you know exactly how it will return ie. in the bedroom. This is by far when enough is enough. It has been plaguing you for a long time but when you can no longer have intercourse with your partner and your intimacy has continued to plummet you have to do something about your pelvic pain NOW!!! Some women struggle with being afraid for your partner to touch your vaginal area because this may cause increased spasms in your pelvic floor. Others struggle with relaxing their pelvic floor muscles to empty their bowels or bladder.  There is a condition called vaginismus which is categorized as primary or secondary. Primary vaginismus happens when vaginal penetration is impossible because of pain you have experienced for your entire life. No object, speculum or penis is able to enter the vaginal canal. Secondary vaginismus happens when you were once able to have penetrative intercourse, but because of life’s circumstances now you can no longer participate in the act. Pelvic Pain and Cancer Treatments This occurs sometimes after having received treatment for cancer especially if you had a decrease in estrogen hormones, total hysterectomy, or radiation. These are things that your physicians may or may not tell you. Sometimes they educate patients that this could happen but most patients are so focused on decreasing their cancer that they look over this conversation and forget that pelvic pain could come as a result of treatment as a secondary issue. Tissues may be very dry, brittle and thin following treatments for cancer and after certain hormones have been reduced in the body. Our minds are also affected by lack of intimacy. Some women are in a place where they are so super stressed and there is a lack of concentrating on relaxation and breathing appropriately. Because of this penetrative intercourse cannot happen and pelvic pain is the result. Not breathing well affects how we move in the bedroom. There is a strong connection. How to manage pelvic pain and how can your PT help? This is the place where a pelvic floor PT can help reduce pain . There are 10 practical methods to help one reduce pelvic pain.    Remove unnecessary stressors from your life Learn to breathe properly through your diaphragm Learn how to relax your pelvic floor muscles with a pelvic floor physical therapist Stretch muscles of your hips, low back and abdominal wall Learn how to appropriately use a vaginal wand/dilators Use lubrication  Communicate how you feel with your partner/spouse Request a Pelvic Floor PT consult - (request a visit with me) Get a mental health therapist or coach to help you talk through your intimate concerns Exercise I hope that you have found this information helpful and that you can apply some of these strategies to your daily routine if you have pelvic pain or know someone who does. Be well!  About Dr. Katrina Heath Dr. Katrina Heath is a physical therapist specializing in pelvic floor rehabilitation. She works with patients who have pelvic floor issues due to cancer treatment like surgery, radiation or chemotherapy.

In a video shared with The After Cancer, patient advocate and former primary caregiver, Chris Schuler adds his voice to the many advocating for greater urgency and awareness about Brain Cancer and Brain Tumor Awareness Month. He recognizes all those whose lives have been touched by the disease – current patients, survivors, and caregivers - and acknowledges the tireless efforts of those who are working to help fight it – doctors, researchers, donors, and investors. He concludes that Brain Cancer and Brain Tumor Awareness Month is an opportunity for us all to come together in order to affect real change. “No matter how you recognize this month – through advocacy, survival, or quiet reflection – you are not forgotten, you are not alone. We need everyone pulling in the same direction and with the same persistence and unwavering focus if we expect to see change.” Chris is a staunch brain cancer awareness advocate. He was the primary caregiver to his late Dad, Donald Schuler, who was diagnosed with GBM in July 2021. He works closely with organizations across the globe, amplifying their critical work and building key relationships to further improve outcomes for patients. He's currently working with Cure Brain Cancer Foundation , an Australian non-profit dedicated to improving outcomes in brain cancer. He's a Venture Partner with Varia Ventures , working to raise awareness for emerging venture funds dedicated to uncovering and funding innovative discoveries to improve brain health. He also works closely with SageMedic , a precision oncology start-up supporting patients looking for the most effective treatment for cancer.

We are excited to share our experience at the Teal Diva 5K race in May 2024. This event was another significant milestone for The After Cancer, highlighting our continued commitment to engaging with the community. The Teal Diva 5K, dedicated to raising awareness and funds for ovarian and gynecologic cancer research and support, provided an excellent platform for us to showcase our unique care model based on Integrative Oncology. Connecting with the Community of GYN Cancer Survivors The day was filled with energy, enthusiasm, and an overwhelming sense of community. We had the incredible opportunity to meet many wonderful individuals, each with their own powerful stories of resilience and strength. These interactions were not only heartwarming but also underscored the immense need for comprehensive support for cancer survivors, reinforcing our mission . Engaging with the local community allowed us to better understand and address their unique needs. Introducing The After Cancer Resources to Cancer Survivors in Charlotte Our booth attracted numerous visitors eager to learn about our resources designed to help survivors manage treatment symptoms, adopt healthy behaviors, and reduce the risk of recurrence. The genuine interest and positive feedback we received were truly encouraging. Many of these amazing individuals decided to join our group sessions, where they can find a supportive community and access the personalized care they need. Our presence at the Teal Diva 5K highlighted the importance of local engagement and support. Building a Supportive Community for GYN Cancer Patients Participating in the Teal Diva 5K race in May 2024 was a profound experience for The After Cancer team. It allowed us to connect with survivors, share our vision, and lay the foundation for lasting relationships within the cancer community. We are grateful for the warm reception and look forward to continuing our journey, providing the support and resources survivors need to thrive. Our involvement in this event has strengthened our commitment to making a difference locally and beyond. By participating in events like the Teal Diva 5K, The After Cancer aims to raise awareness and offer invaluable support to cancer survivors. We are excited to grow our presence and help more individuals on their journey to health and wellness. About Mariana Arnaut Mariana Arnaut  is the CEO and Co-Founder  of The After Cancer. She has a family history of different cancers (lung, melanoma, esophageal) and a background in digital & innovation. You can reach out to her at mariana@theaftercancer.com .

What is fear of recurrence and why do I have this?    Fear of recurrence is a natural part of the normal process after a cancer diagnosis. Typically, more prevalent in survivors who are diagnosed with non-metastatic disease or with those who are deemed NED (No Evidence of Disease) through treatment. This fear often shows up after treatment is completed and a desire for a life that resembles normalcy returns.   The term “ New Normal ” is often used when describing this stage or sometimes “Back to Normal” is used.   How does it show up for cancer survivors? What are the triggers? Does it ever go away?    The truth is that anxiety about the unknown is normal. Fear of recurrence can show up sporadically and unexpectedly. Research shows that up to 89 % of survivors experience some level of a Fear of Recurrence. It can disrupt psychological well-being and manifest anxiety, depression , post-traumatic stress disorder , and feelings of uncertainty and vulnerability.   Some of the symptoms may include poor sleep , restlessness, scattered thoughts, diminished self-esteem or being short-tempered, among other ways. It is important to recognize this as a condition that is REAL but also have reassurance that there are effective ways to cope with the fear of recurrence.   Recognizing some of the triggers that bring on the fear of recurrence is also very helpful so that steps can be taken to understand and alleviate the fear.   Common triggers include:   Scanxiety – the anxiety that comes with upcoming scans. Planning for the future – Ready to resume some form of normalcy such as planning a vacation but unsure that you will be physically able. Unexplained pain – Every ache and pain could be the return of cancer, even if it may be irrational.   This fear can be much stronger at the end of treatment and will often lessen or even diminish over time. Research shows that many breast cancer survivors experience the fear of recurrence for 9 years. So be patient with yourself. How can I manage fear of recurrence?   The GREAT news is that are effective ways to manage the fear of recurrence.   Acknowledge your feelings and most importantly, be gentle with yourself. Join a positive support group. Surrounding yourself with survivors who understand what you are experiencing is powerful. Use positive self-affirmations and kind, loving words when referring to yourself. Spend more time doing the things you LOVE to do. Positive distraction with at least one pleasurable activity per day can have a huge impact on mindset and mood. Remind yourself daily that going backwards is not an option. Instead of trying to get “back to normal” try instead of embracing the NOW of Normal, at this very moment with the question. What can I be NOW? Add a self-care routine to encourage positive lifestyle choices that can reduce your risk or recurrence. Proper nutrition, exercise, and stress reduction techniques are just a few of the things you CAN implement to regain some control of your situation. Recognize that you are not a statistic, and that recurrence rates on a cancer diagnosis do not consider all the positive reinforcement and changes you are making in YOUR situation. A wonderful unique individual!!! Book an appointment with one of our care team professionals at The After Cancer. We are here for you with evidence-based practices to support you to a healthier and more resilient survivorship.   About Cheryl Lecroy Cheryl Lecroy  is a breast cancer survivor and has been supporting cancer patients for over 10 years. Her mission is to offer tools to reignite inner joy, purpose, and help reconnect survivors to their true essence; the after cancer paradigm.

A new study has found that most young women who attempt pregnancy after a breast cancer diagnosis can successfully conceive and give birth. This research, conducted by Sorouri et al , will be presented at the 2024 ASCO Annual Meeting . The study analyzed data from the Young Women's Breast Cancer Study, which included women diagnosed with stage 0 to III breast cancer at age 40 or younger from 2006 to 2016. Researchers excluded women who had prior hysterectomies, bilateral oophorectomies, or metastatic disease at diagnosis. 65% of Participants Reported At Least One Child Participants:  1,213 women, with 197 attempting pregnancy post-diagnosis. Demographics:  Median age at diagnosis was 32; 74% were non-Hispanic White. Cancer Stages:  41% had stage I, 35% stage II, 10% stage III, and 14% stage 0. Treatment:  76% had hormone receptor-positive disease; 68% received chemotherapy. Pregnancy Attempts:  73% of those who tried to conceive were successful, and 65% reported at least one live birth. Timing:  Median time from diagnosis to first pregnancy was 48 months. What Factors Can Influence Pregancy After Breast Cancer? Age:  Older age at diagnosis reduced the likelihood of pregnancy and live birth. Financial Comfort:  Greater financial comfort increases the likelihood of pregnancy. Fertility Preservation:  Undergoing fertility preservation at diagnosis increased the likelihood of live birth. Why is Discussing Fertility Preservation Important? This long-term study highlights the critical importance of making fertility preservation services accessible to young breast cancer survivors. Given the significant number of women who can successfully conceive and give birth post-diagnosis, it's evident that fertility preservation can play a crucial role in their family planning. Ensuring that these services are readily available and integrated into cancer care can provide hope and practical options for survivors looking to maintain their fertility and achieve pregnancy after treatment.

These infused waters will help you stay hydrated through the summer months. AND they are beautiful and refreshing!  Try these refreshing combinations: Lemon, lime and mint. (my all-time favorite) (1gallon water, 2 sprigs mint (15+ leaves) ½ lemon, ½ lime. Strawberry and kiwi. Strawberries can be whole or halved, green removed. Kiwi should be firm and peeled. Cucumber and mint. Cucumber can be strong, 9 – 12 slices is plenty Cucumber, lime and lemon. Lemon, lime and orange. Lemon. Orange and lemon. Peaches. This is beautiful! Add as many peaches as desired. Rosemary. Rosemary and cucumber Spa waters are not only beautiful and refreshing,they are also good for energy and hydration. Put as much fruit in the water as you like (depending on desired taste) and let the water sit for at least 30 minutes before drinking. Directions: Fill a clear glass pitcher with cool water, and add a few ice cubes if desired. Wash and prepare all fruit and herbs. Pat dry. Slice chosen fruit(s) into uniformly sized slices- this varies depending on the size of the pitcher. For a pretty presentation, add herbs by the stem. Make sure fruit is not too large or thick – large chunky fruit can overpower the flavor and make water seem pulpy and more like juice. Spa water should only have the hint of the taste of fruit and herbs. Put the slices into the pitcher(s), shake a little, and wait a few minutes for the taste to set in. Lemon, lime, orange, mint can steep longer (2 – 3 hours) without the fruit/herbs becoming soft. For waters with cucumber, peach, strawberries, or kiwi serve within ½ an hour of preparing so the fruit maintains the structure. Use only fresh firm fruit. Avoid over ripe or bruised fruit. Sample water before serving to make sure there is just a hint of flavor and little to no pulp. About Cheryl Lecroy Cheryl Lecroy is a breast cancer survivor and has been supporting cancer patients for over 10 years. Her mission is to offer tools to reignite inner joy, purpose, and help reconnect survivors to their true essence; the after cancer paradigm.

A research that spanned over 20 years, and included nearly 70 scientific investigations, led by Professor Tamarra James-Todd has established the link between hair relaxers, mostly used by black women, and reproductive health issues. Why Are Hair Relaxers Dangerous? The research has shown that hair straighteners and similar products contain hormone-disrupting chemicals. These substances are found to be linked to early menstruation, uterine fibroids, preterm birth, infertility, and various cancers, including breast, ovarian, and uterine cancer. Formaldehyde, a common ingredient in these products, is associated with cancer and other long-term harmful health effects. Studies have also found that many toxic ingredients are not listed on the packaging, leading to widespread unawareness of the risks. Why This Particularly Concerns Black Women Black women are disproportionately affected by the dangers of hair relaxers. A study conducted in 2020 found that 89 percent of Black women in the United States have used hair relaxers at least once, often starting in childhood. This extensive use, driven by societal pressures to conform to Eurocentric beauty standards, has led to serious health risks. Many of these health issues are more common in Black women, including an aggressive form of breast cancer with a death rate 28% higher than that of white women. Legal and Legislative Actions In response to these health risks, California became the first state to pass the CROWN Act in 2019, making hair discrimination illegal. Since then, 23 other states, 50 cities, and the House of Representatives have passed similar legislation. In October 2022, following the publication of the Sister Study research, the first lawsuit was filed against companies accused of knowing their products increased cancer risk but not warning consumers. By February 2023, these cases were combined into a class-action lawsuit to speed up the legal process. Moving Forward Professor James-Todd's research is crucial in advocating for stricter regulations and raising awareness about the health risks associated with hair relaxers. While the FDA's proposal to ban formaldehyde is a step in the right direction, more comprehensive actions are needed to protect Black women from these dangerous products.

Cancer Survivors Month is all about honoring everyone who is currently battling cancer or has fought it in the past. It's a time to recognize the challenges faced by our community of survivors and to raise awareness of cancer survivorship. The Importance of Cancer Survivors Month Recognition and Support : This month is an opportunity to recognize the courage and resilience of cancer survivors. It’s an occasion for families, friends, and communities to show support to their loved ones. Awareness and Education : It educates the public about the ongoing, yet unknown challenges survivors face even after treatment. This includes physical, emotional, and financial issues. Advocacy and Research : It highlights the importance of continued research and funding to improve survivors' quality of life and find better treatments and, ultimately, cures for cancer. Inspiration and Hope : Sharing survivor stories can inspire those currently battling cancer and give us both hope and a sense of community. Key Facts & Stats of Cancer Survivorship Prevalence : As of 2023, there are approximately 18 million cancer survivors in the United States alone. This number is expected to grow to 26 million by 2040. Survivorship Growth : Advances in early detection and treatment have significantly increased the number of cancer survivors. The five-year survival rate for all cancers combined has increased from 49% in the mid-1970s to 70% today. Age Distribution : The majority of cancer survivors are aged 65 or older. However, there are about 1.9 million survivors who were diagnosed as children or adolescents. Gender Differences : Women slightly outnumber men among cancer survivors, with breast cancer being the most common type of cancer among female survivors and prostate cancer being the most common among male survivors. Quality of Life : Many survivors report a good quality of life post-treatment, but a significant portion still faces chronic health issues related to their cancer or its treatment. The Main Concerns of Cancer Survivors Contrary to popular belief, cancer doesn’t end when treatments are done. Survivors experience several concerns: Physical Health : Long-term effects of cancer treatment can include fatigue , pain and neuropathy . Regular follow-up care is crucial to manage these issues. Emotional and Mental Health : Survivors often experience anxiety, depression , and fear of recurrence . Mental health support and counseling are vital components of survivorship care. Social and Relationship Issues : Cancer can affect relationships with family and friends . Many feel misunderstood on several levels, while others may also face social isolation or changes in their roles within their families and communities. Employment and Daily Life : Returning to work and daily activities can be challenging. Survivors may need accommodations or may face discrimination in the workplace. How The After Cancer Supports Cancer Survivors At The After Cancer, we care for cancer survivors beyond treatment with our community-driven teleheath platform. We're your digital clinic for cancer survivorship and provide: Video Consultations with Experts : We offer individual video consultations with a dedicated team of experts committed to understanding your situation and providing tailored support. Our professionals have extensive knowledge and experience in cancer survivorship. They bring compassion to every interaction, ensuring that you receive the attention and care you deserve. Community Membership : We recognize the complex needs of patients and the importance of integrative care in addressing them. Our membership model provides a variety of live classes, that promote physical and mental health, and educational journey designed to help you regain health and wellbeing and reduce stress. Educational Resources : We believe that knowledge is empowering. That’s why we offer an education hub filled with the latest and most relevant information, curated by our team of experts. This resource is continually updated to ensure you have access to cutting-edge insights and advice that can help you navigate your survivorship journey.

This date is an important reminder of the disease risk factors and the most common symptoms, so that we are able to recognize it as early as possible. It is also an important month to remind ourselves a little of the history of our fight against cancer. The battle against sarcoma, especially Kaposi's Sarcoma, embodies a truth that runs through all our battles against cancer: in the course of fighting it, we had to defeat our internal enemies first.  What is a Sarcoma and what are known risk factors? It is difficult to speak of sarcoma as a single entity, as the definition includes more than 70 different types of cancer. Sarcoma is the general term for a large group of cancers that arise in the bones or soft tissues (muscles, fat, blood vessels, nerves, tendons, and synovium). This year, an estimated 17,100 people in the United States will be diagnosed with sarcoma. Although it is one of the rarest cancers in adults, less than 1% of the total, it is considered one of the deadliest rare cancers. Therefore, it is important to know the risk factors and symptoms because, as with any other cancer, the earlier it is diagnosed, the better the prognosis. Here are some known risk factors that increase the likelihood of the disease: If someone in your family has had sarcoma; You have a disease called Paget's disease; You have a genetic disorder such as neurofibromatosis, Gardner syndrome, retinoblastoma or Li-Fraumeni syndrome; You have been exposed to radiation, perhaps during treatment for a previous cancer; What are the common symptoms of Sarcoma? There are some things you can keep an eye out for in terms of common symptoms. Soft tissue sarcomas are difficult to spot, they can grow anywhere in your body. Most of the time, the first sign is a painless lump. As the lump grows, it may press on nerves or muscles and cause discomfort and/or breathing difficulties. There are no tests that can detect these tumors before they cause symptoms that you notice. Osteosarcoma may show obvious early symptoms, such as on-and-off pain in the affected bone that may worsen at night, stitching that often starts weeks after the pain, and a limp if the sarcoma is in your leg. Treatment is usually surgical, combined with chemotherapy and radiotherapy . However, recent research is getting closer and closer to new treatment methods. One of the greatest innovations of recent decades, immunotherapy to fight cancer, could soon be available for sarcomas. The link between HIV and Kaposi’s Sarcoma On July 3, 1981, a New York Times article was headlined, “Rare Cancer Seen in 41 Homosexuals”. In the early 1980s, the medical community, particularly in New York and Los Angeles, noted a sudden increase in the incidence of a very rare form of sarcoma called Kaposi’s Sarcoma. The rise of several cases of cancer among gay men led to increasing stigmatization, to the point that the disease came to be known as “gay cancer”. No one knew what was causing that sudden increase and the fact that it was contained in that particular population certainly delayed actual research.  One thing that made it possible to overcome the stigma was that cancer at that time was seen as the nation’s number one health problem and funding for research was highly available. The fact that the sarcoma only occurred in one particular community, suggested that it might have an identifiable cause that, if uncovered, could potentially lead to a universal cancer cure. This outcome did not materialize. However, the cancer research, largely funded by the Cancer Research Institute (CRI), paved the way for us to understand what was truly causing the increased incidence: the soaring HIV epidemic. Without the cancer's importance at the time, scientists probably would not have recognized the cause of AIDS so quickly. History books refer to Kaposi’s sarcoma as the disease that unveiled the HIV epidemic, which to this day has killed over 40 million people. This disease showed that we can sometimes be our own worst enemies. Sarcoma is rare, but you can make a difference. Last but not least, because sarcoma is a rare disease, the financial incentives for research and development of new treatments are low. But you can do your bit to change this reality. For example, by donating to institutions like the Sarcoma Foundation of America that support medical research to find a cure for sarcoma. By doing that, you can make the sarcoma awareness month a hopeful moment for those who are going through that difficult challenge.  Written by Luis Guilherme

A new study published in JAMA Network Open , by Vivian N. Liu, MA S, Erin L. Van Blarigan, ScD , Li Zhang, PhD , et al., shows promising results regarding the impact of plant-based diets on the survival of prostate cancer patients . The research discovered that individuals who consumed a considerable amount of plant-based food experienced notably reduced risks of cancer progressing, in comparison with those who consumed fewer plant-based foods. These findings highlight that a diet rich in plant-based foods could significantly benefit men with prostate cancer . What is a Plant-based Diet for Prostate Cancer Patients? A plant-based diet focuses on consuming mainly vegetables, fruits, whole grains, and legumes. This dietary approach can range widely in its strictness and inclusion of animal products, creating a spectrum of dietary practices: Vegan Diet : The strictest form of a plant-based diet, vegans avoid all animal products, including meat, dairy, eggs, and even honey. This diet is exclusively comprised of plant-derived foods. Vegetarian Diet : Vegetarians avoid meat, fish, and poultry but typically consume dairy products and eggs. Flexitarian Diet : Also known as semi-vegetarian, this diet is primarily plant-based but occasionally includes small amounts of meat, fish, or poultry. It offers flexibility for those who wish to reduce their meat consumption without completely eliminating it. Pescatarian Diet : Pescatarians follow a plant-based diet that includes fish and seafood. They avoid meat and poultry but consume other animal products like dairy and eggs. How Plant-Based Diets Can Benefit Prostate Cancer Patients? Plant-based diets may improve outcomes for prostate cancer patients due to several factors: Cancer-Fighting Agents: Plants are abundant in compounds that combat inflammation and cellular damage, thereby potentially slowing cancer growth . Weight Control: These diets are generally lower in calories and rich in fiber, which aids in maintaining a healthy weight—a key factor in lowering cancer risk. Fewer Harmful Substances: Reducing the intake of red and processed meats minimizes exposure to carcinogenic substances that develop during cooking and processing. Improved Heart Health : Rich in fiber, antioxidants, and healthy fats, plant-based diets can lower cholesterol levels and reduce the risk of cardiovascular diseases. Nutritional Considerations before Starting a Plant-Based Diet While plant-based diets offer many benefits, it's important to ensure a balanced intake of essential nutrients: Protein : Sources include legumes, nuts, seeds, tofu, and tempeh. Vitamin B12 : Since B12 is primarily found in animal products, vegans may need fortified foods or supplements. Iron : Plant-based iron (non-heme) is less readily absorbed, so including vitamin C-rich foods can enhance absorption. Calcium : Found in fortified plant milks, leafy greens, and tofu. Omega-3 Fatty Acids : Flaxseeds, chia seeds, walnuts, and algae-based supplements are good sources. Before starting any new dietary regimen, including a plant-based diet, it is important to consult with a healthcare professional or a registered dietitian . This ensures that the diet is appropriate for your individual health needs and conditions. A doctor can provide personalized advice, identify any potential nutrient deficiencies, and recommend supplements if necessary, helping to create a balanced and sustainable diet plan.